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Unmasking Africa’s Neglected Health Crisis: Rare Diseases that Escape Western Medical Radars

Est Read Time: 12 min(s) 4 sec(s) 29 November 2023   Nthabeleng Ramoeli is the founder of Rare Disease Association Lesotho. Credit: Nthabeleng Ramoeli. A coalition of professional human genetics organisations, rare disease patient advocacy groups from six African countries and the health youth cluster of the Southern African Development Community [...]

Miracle Blood: A Life Saved, a Rare Disease Revealed – The Unforgettable Journey of a 45-Year-Old Man

22 November 2023 by Limpho Sello Nkopane Ntlhabo, aged 45, is on a mission to educate people about collagenous gastritis – a rare disease he was diagnosed with in 2020. Credit: Limpho Sello. What began as a typical day for 45-year-old Nkopane Ntlhabo and his wife on 27 September 27 2020, [...]